Abstract

Inspite of the steady increasing government contribution to healthcare, the issue of Rare Diseases was seriously neglected for an extended time. Subsidized drugs for cure of individuals affected by rare conditions were also rare. These subsidies are essential for citizens experiencing rare disorder, as majority of these patients are from economically backward strata. Since a considerably long time a kind of struggle was ongoing ahead of Indian courtroom searching government's attention and fiscal involvement towards these 'Rare Diseases'. India is amongst the countries using the lowest public health financing on the planet, with public health care system in the country only getting 1.26 percent of the whole GDP. The missing support in political figures, for example a complete lacuna of any sort of law on rare diseases was expressed for first time in 2016 when the Delhi High Court dictated Health Ministry to launch a 'National Rare Disease Policy'. The present case in question marks the initiation of the battle before the court of law and the way the judges have responded to the government's plea of having ‘minimal Resources as well as the equitable distribution of exactly the same'.

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